What kind of information do we collect from you?

We collect information that you provide us when you sign up for email updates, make a donation to CURe, purchase merchandise, contribute an idea through our Give Ideas page, or register for one of our events.

Information we collect may include your name, email address, mailing address, phone number, financial information, how you would like your donation directed, and other information not publicly available.

We do not collect any information about your computer hardware and software.



What do we do with the information we collect from you?

CURe and our operational service partners may use the information you provide in one of the following ways:

  • Better our programs and work to improving compassionate use for patients
  • Improve CURe’s website
  • Improve our donation and customer services
  • Process financial transactions, including donations, gifts associated with donations, and merchandise purchases.
  • To send you information regarding your donation or purpose. (The email address you provide during your donation or purchase transaction may be used to send you information regarding your donation or order.)
  • To send periodic email updates regarding CURe and its affiliates. (The email address you provide by signing up for our email updates, by contributing an idea via our Give Ideas page, by making a donation or purchasing merchandise, and by registering for a CURe event may be used to send you email updates. You may unsubscribe from our emails at anytime by following the directions at the bottom of the email.)
  • To send surveys to improve CURe’s current mission, programs, and work and services.



How do we protect your information?

CURe is committed to protecting the security of your personal information. We use a variety of security technologies and procedures to help protect your personal information from unauthorized access, use, or disclosure:

CURe uses a [XXXX]-bit SSL security certificate to maintain the industry standard for safeguarding information transmitted via internet.

When we transmit highly confidential information (such as a credit card number) over the Internet, we use a secure payment gateway so your information is protected.

We store the personal information you provide on computer systems with limited access that are located in controlled facilities. Personal information collected on our site may be stored and processed in the United States or any other country in which CURe or its affiliates, subsidiaries, or agents maintain facilities. By using this site, you consent to any such transfer of information outside of your country. CURe abides by the safe harbor framework as set forth by the U.S. Department of Commerce regarding the collection, use, and retention of data from the European Union.



Do we disclose your information to outside parties?

CURe does not sell, rent, or lease your information or our customer lists to third parties. When we contact you regarding or on the behalf of an external organizations and partners about information, opportunities, or offerings that may interest you, your personal information is not transferred to that third party.

CURe does not use or disclose sensitive personal information, such as race, religion, or political affiliations, without your explicit consent.

When we hire other companies to provide limited services on our behalf (for example, process financial transactions, handle mailing processing and delivery, provide donor and customer support, perform statistical analysis of our services), we only provide those companies the personal information they need to deliver the service. They are required to maintain the confidentiality of your information and are prohibited from using that information for any other purpose.

CURe may access and/or disclose your personal information if required to do so by law or in the good faith belief that such action is necessary to (a) conform to the edicts of the law or comply with legal process served on CURe or our website; (b) protect and defend the rights or property of CURe, including our website; or (c) act under exigent circumstances to protect the personal safety of users of CURe or the public.



How can you control your personal information that we collect?

CURe offers you choices for the collection, use, and sharing of personal information. You may notify us of your preferences by emailing Please be sure to provide complete account information so we can identify you in our records.

You may unsubscribe (that is, stop delivery) from our email updates at anytime by following the directions at the bottom of any email from CURe.



How can you protect personal information on other sites?

We encourage you to review the privacy statements of websites you choose to link to from CURe’s websites, so you can understand how those websites collect, use, and share your information. We are not responsible for the privacy statements or other content on websites outside of our website.



Will we change our privacy policy statement?

We will occasionally update this Statement of Privacy to reflect organizational and customer feedback. If there are material changes to this Statement or to the way in which we will use your personal information, CURe will prominently post the changes prior to implementing the change. We encourage you to periodically review this Statement to be informed of how we are protecting your information.



Your Consent

By using this website, you consent to our Statement of Privacy above.




209 E. 6th St, Suite 300-C

Austin, TX  78701